Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storySince Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impactcommitted to research
research projects funded
patients supported by our Telehealth Nurse
of leveraged funding
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
Learn moreKeep up to date with the latest Maddie Reiwoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
Read More NewsRare Disease Day, held this year on February 29, is a global movement that aims to recognise and raise awareness for the 300 million people worldwide who are living with a rare disease, …
Read moreAt Maddie Vision, we’re making regular giving easier than ever, and we want you to be a part of it! Now you can support Maddie’s Vision through Cents2Bills, which will enable you …
Read moreThanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
View all research projects