Supporting those with an inherited metabolic disorder and their families so that they can thrive and live their best life.
We raise awareness of inherited metabolic disorders like PKU and other rare IEpMs, we build programs and develop resources from newly diagnosed infants through all life stages.
“MDDA provides me with a window to what is happening in Australia with regards to my PKU and allows me to reach out to others”
Philip
“As a MDDA member I feel connected and not alone with my son’s diagnosis. It eases my mind and reduces my anxiety. I know I will get help if I need it”
Melissa
Diet
The Low Protein Diet is for life for people living with an inherited metabolic disorder.
Care & Support
The MDDA offers various resources and programs to assist in diagnosis and management.
News Room
MDDA Matters February eNews 2025
The February edition of our e-news is here! This month, we’re recognising Rare Disease Day, celebrating a huge advocacy win for low-protein milk on the PBS, and looking ahead to […]
Low-Protein Milk to Remain on the PBS: A Win for Our Community
Advocacy isn’t easy, but for MDDA, it’s essential. The availability of low-protein milk substitutes under the PBS has been uncertain, creating unnecessary stress for individuals and families managing a low […]
Moderna Abandons Australian Rare Disease Community by Withdrawing from Clinical Trial Melbourne, Australia – 17 February 2025 –
The Metabolic Dietary Disorders Association (MDDA), along with patients and clinicians, are profoundly disappointed by Moderna’s sudden decision to withdraw the Australian clinical trial for Methylmalonic Acidemia (MMA) and are […]
Nutricia Store Website Update
📢 Community Announcement: NutriciaStore Website Update 📢 We’re sharing an update from Nutricia regarding the NutriciaStore website (www.nutriciastore.com.au). For those in our community who rely on NutriciaStore for low-protein ‘Loprofin’ products, here’s what […]
Events
2025 NSW National Family Retreat
Location: Fairmont Resort, Blue MountainsDate: November 21-23, 2025 Join us for an unforgettable weekend at the 2025 MDDA National Family Retreat, held at the stunning Fairmont Resort in the Blue […]
Christmas Appeal 2024
This Christmas, we invite you to be part of something truly special. Metabolic Dietary Disorders Association Inc (MDDA) are the national peak consumer body dedicated to supporting, educating, connecting, and representing […]
Upcoming 2024 MDDA Annual General Meeting
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to […]
MDDA Adult PKU/IEM Lived Experience Support Group
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 […]
🌟 Good Luck to Our New School Starters and
25 for 25: Make This Christmas Truly Special! 🎄
🌟 A Huge Thank You to Our Amazing Sponsors and
Are you up for the Challenge in 2024!?
🌍 Celebrating Rare Disease Day 🌍
Rare
MDDA raise awareness of inherited metabolic
MDDA RETREAT REGISTRATIONS ARE NOW OPEN!
Happy Mother’s Day to all the wonderful IEM Mums!
Happy Easter from all of us at MDDA!
We
BREAKING NEWS - An important win for the
Returning for 2023….The Great Protein Challenge
SAVE THE DATE - 2023 National Family Retreat
2023 Reminder - Important Information About the
Today is Rare Disease Day!
Rare Disease Day
With the Summer holiday fun coming to a close, for
IMPORTANT INFORMATION ABOUT THE IEM FOOD GRANT
We wish you a Merry Christmas and Happy New Year
THE RETREAT IS HERE!
Team MDDA touched
The Power of Advocacy a win for equitable
Team MDDA’s LowProHighTea!
Team MDDA
MDDA is registered with the Australian Taxation Office as an Public Benevolent Institution. We are endorsed as a Deductible Gift Recipient (DGR). All donations over $2 are tax deductible.
Disclaimer: Information presented within this website is intended for general purposes only and should not be construed as advising on diagnosis or treatment of any medical condition, if you have interest in any of the foods or treatments contained within this website check first with a qualified health professional.
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In the spirit of reconciliation the Metabolic Dietary Disorders Association acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their Elders part and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.